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C19 Vax Reactions - Maddie de Garay Aged 12
"My 12 year old daughter was a healthy 7th grader with no major medical issues other than dermatographia and ADHD which she was taking vyvanse to manage. She participated in the Pfizer vaccine trial for 12-15 year olds at our Children’s Hospital. She received her first dose in the trial on 12/30/20. The next day she had a fever of 101, felt tired and had swelling at the injection site but all of these resolved within a couple days. She received her second dose on 1/20/21. She had immediate pain at the injection site which didn’t happen with the first dose. About 18 hours after receiving the vaccine, she developed the following: severe muscle/nerve pain, painful electrical shocks down her neck and spine which caused her to walk hunched over, severe chest pain that felt like her heart was being pulled out, numbness and swelling in her vaccine arm (left), her fingers and toes turned white and were ice cold to the touch, the pain in her toes was so bad she walked on her heels, severe abdominal pain (especially on lower right side) and a fever of 101.4. We were instructed to take her to the ER at our Children’s Hospital where they did an ultrasound to check for appendicitis. The results showed there wasn’t any sign of appendicitis even though the appendix could not be visualized or the right kidney, her bladder appeared normal and a note that there was a diffuse gaseous filled bowel seen throughout the right lower quadrant. They did a renal profile that showed her potassium was slightly low (32) and her glucose was slightly high (110), they did not do any other blood tests. Her urine test showed a moderate amount of blood in her urine. She was given an IV, tylenol and zofran, then sent home.
Over the next 2.5 months her severe abdominal pain along with the muscle and nerve pain persisted plus she new symptoms including: fatigue, nausea, vomiting, abdominal distension, regurgitation of food and eventually the inability to swallow food or liquids, itchy rash on her arms, peeling skin on her feet, unexplained painful cysts on her vagina and then head, tinnitus, vision problems, headaches, dizziness, erratic blood pressure and heart rate, memory loss, brain fog, verbal and motor tics, fainting/seizures (10+ a day), loss of feeling from the waist down then paralysis of her legs, inability to walk, muscle weakness, abnormal gait, gastroparesis, urinary retention, anxiety, and medical PTSD.. Additionally she started her first menstrual cycle on 2/5/21 which continued off and on for over a month with clumps of blood and then off and on spotting until 4/13/21 and nothing since then. Between 1/21/21 and 4/9/21 we had to take her to the ER nine (9) times and she was admitted to the hospital 3 times. In between hospital visits she has seen multiple specialists at the Hospital and had Physical Therapy and Cognitive Behavioral Therapy with no improvement, instead she continued to decline..
After several desperate calls to multiple doctors expressing our concern for her declining health and more ER trips we finally got help from our new Care Coordinator to have neurology guarantee she would be admitted if we went to the ER on 4/9/21. When she got to the ER on 4/9/21 she could not walk, was unable to feel or move below her waist, had tachycardia and her blood sugar was at 47. Once she was stable they admitted her to neurology and then transferred her to Inpatient Rehabilitation on 4/13/21. As of today, 5/24/21, she is finally close to being able to walk without a walker but she still has an abnormal gait. She also still has an NG tube for nutrition and continued problems with urination and gastroparesis, not to mention the PTSD from this experience with doctors, especially in the ER and Pfizer Vaccine Trial, doubting her and treating her like a mental patient. Right now every Wednesday and Friday, she has to meet specific PT goals. If she is unable to reach these goals, she will be discharged to follow-up outpatient primarily with Pain, GI, Adolescent, and psychology"
Category | Health & Medical |
Sensitivity | Normal - Content that is suitable for ages 16 and over |
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